Forgiveness Fills Life with Research Proven Health Benefits

Maybe you are considering forgiveness for yourself or others, but you’re not sure it’s worth the emotional effort. You might prefer to ignore the painful memories, stuff it down and keep going about your daily affairs. You will just deal with it later, right?

To forgive, whether yourself or others, and to be forgiven, brings relief beyond just the emotional or even spiritual, if you at a person of faith.  Today is Forgiveness Day – one of many observed throughout the year.  The original was established as International Forgiveness Day in response to a call to set aside old differences made by Desmond Tutu.  There is also Global Forgiveness Day next Saturday, and National Forgiveness Day in October.  All have one purpose – to encourage us to set things right; and there are great health benefits to doing so!

Whether it’s a bout with your boss, a feud with a family member or friend, or a spat with your spouse, unresolved conflict can go deeper than you may realize—it may be affecting your physical health. Not forgiving has its costs. When we harbor grudges and grievances, we retain everything that goes with them: anxiety, irritability, anger, and depression.  We may suffer insomnia, experience weight gain or loss, endure depletion of trust in ourselves and others, get caught up in numbing addictions and get stuck in a nerve fraying fight-or-flight mode.

The list is long and disabling.  The good news: Studies have found the act of forgiveness can pay huge dividends for your health, And research points to an increase in the forgiveness-health connection as you age.

What are the health benefits of forgiveness?

In a study at Virginia Commonwealth University, researchers sought to prove what many might already feel is common sense. They wrote, “Chronic unforgiveness causes stress. Every time people think of their transgressor, their body responds. Decreasing your unforgiveness cuts down your health risk. Now, if you can forgive, that can actually strengthen your immune system.” [1]

Dr. Bernie Siegel, author, surgeon and retired medical professor at Yale University, said, “I have collected 57 extremely well-documented so-called cancer miracles. At a certain particular moment in time, they decided that the anger and the depression were probably not the best way to go, since they had such little time left.

And so, they went from that to being loving, caring, no longer angry, no longer depressed, and able to talk to the people they loved. These 57 people had the same pattern. They gave up—totally—their anger, and they gave up—totally—their depression, by specifically a decision to do so. And at that point, the tumors started to shrink.” [2]

Medical researchers have become increasingly interested in studying the effects of forgiveness as a healing process. Evidence is mounting:  holding onto painful memories and bitterness results in long-term health problems. Forgiveness, on the other hand, offers numerous benefits, including:

  1. Lower blood pressure

When we no longer feel anxiety or anger because of past grievances, our heart rate evens out and our blood pressure drops. This normalizes many processes in the body and brings us our heart and circulatory system into stability.

  1. Stress reduction

Forgiveness eases stress because we no longer recycle thoughts (both consciously and subconsciously) that cause psychic stress to arise. By offering our burdens for healing, we learn how to leave irritation and stress behind.

  1.  Less hostility

By its very nature, forgiveness asks us to let go of hostility toward ourselves and others.  Spontaneous hostile behavior, like road rage and picking a fight for no reason, diminishes as our commitment to forgiveness goes up.

  1. Better anger-management skills

With fewer and fewer burdens from the past weighing us down, we have more self-control when we do get angry. We’ll be better able to take some breaths, count to ten, take a time-out or get some exercise—rather than strike out or lash out in anger.

  1. Lower heart rate

Forgiveness relaxes our hearts –  pain will ease out of our system. Our hearts calm down, and our heart rate decreases as a result.

  1. Lower risk of alcohol or substance abuse

This is a big one – possibly the biggest and best reason to jump into a forgiveness practice without delay. Substance abuse is a mask for underlying pain. Forgiveness helps release that pain and find the gifts in our situation instead.

  1. Fewer depression symptoms

Similar to lowering substance abuse, this is a crucial issue with retained anguish. Depression is debilitating and can lead to suicide. On the other hand, forgiveness gives us healing and can leave room to replace depression with a sense of purpose and compassion.

  1. Fewer anxiety symptoms

Almost everyone needs to forgive him or herself as well as others. Anxiety often arises when we fear we’ve done something wrong. Our guilty conscience causes tension at a deep level. Forgiveness helps us to love ourselves deeply, relieving inner pain.

  1. Reduction in chronic pain

Physical pain often has psychological underpinnings. When we allow a profound shift to happen with forgiveness, we heal ourselves on both psychological and physical levels. Thus, chronic pain can be reversed, and we can be restored to best health.

  1. More friendships

When we’re no longer holding grudges, we can get a lot closer to friends and family. Old relationships have a chance to change and grow, and new relationships can enter—all because we made room for them with forgiveness.

  1. Healthier relationships

When we make forgiveness a regular part of our emotional practice, we start to notice all of our relationships begin to blossom. There’s far less drama to deal with, and that’s a huge bonus.

  1. Improved psychological well-being

A good life, full of quality relationships, service to others and fun, is something that most of us hope for without ever knowing how to create it.  By releasing our grievances, we become more harmonious on all levels. Nightmares recede, and exciting new life visions become commonplace. We feel calmer, happier and ready to give compassion and love to the world.

  1. Enhanced immune function

Forgiveness lowers cortisol – a steroid hormone produced in response to stress that causes weight gain – and boosts immune function. You’ll feel more relaxed and centered, and you won’t get sick as easily once you’ve let go for good through forgiveness.

Looking at the list, it’s easy to see that if you had lower stress, hostility, blood pressure and chronic pain, you’d be far healthier for it. Also, if you had better relationships, improved psychological well-being and greater emotional connection, you could be living a life of joy and purpose.

Can You Learn to Be More Forgiving?

Now, look at this list below to see if you would enjoy improvements in any of these areas of your life:

  • Your Physical Health
  • Relationships with Loved Ones (Lovers, Spouse, Exes, and Friends)
  • Family Issues with Parents, Siblings and Children
  • Trauma from Childhood
  • Impacts of Racism, Sexism and Other “Isms”
  • Money Worries
  • Sexual Issues
  • Blocked Creativity

Forgiveness is not just about saying the words. It is an active process in which you make a conscious decision to let go of negative feelings whether deserved or not. As you release anger, resentment and hostility, you make room for empathy, compassion and sometimes even affection for the person who wronged you.

Studies have found some people are just naturally more forgiving. Consequently, they tend to be more satisfied with their lives and to have less depression, anxiety, stress, anger and hostility. People who hang on to grudges, however, are more likely to experience severe depression and even post-traumatic stress disorder, as well as other health issues described earlier. But that doesn’t mean they can’t train themselves to act in healthier ways. 62 percent of American adults say they need more forgiveness in their personal lives, according to a survey by the nonprofit Fetzer Institute.

Making Forgiveness Part of Your Life

Forgiveness is a choice.  You are choosing to offer compassion and empathy to the person who wronged you.  The following steps can help you develop a more forgiving attitude—and benefit from better emotional and physical health.

Reflect and remember.

That includes the events themselves, and also how you reacted, how you felt, and how the anger and hurt have affected you since.

Empathize with the other person.

For instance, if your spouse grew up in an alcoholic family, then anger when you have too much to drink might be understandable.

Forgive deeply.

Simply forgiving someone because you think you have no other alternative or because you think your faith requires it may be enough to bring some healing, but one study found people whose forgiveness came in part from understanding no one is perfect were able to resume a normal relationship with the other person.  This was true even if that person never apologized. Those who only forgave in an effort to salvage the relationship typically wound up with a worse relationship.

Let go of expectations.

An apology may not change your relationship with the other person or elicit an apology from them. If you don’t expect either, you won’t be disappointed.

Decide to forgive.

Once you make that choice, seal it with an action. If you don’t feel you can talk to the person who wronged you, write about your forgiveness in a journal or even talk about it with someone else in your life whom you trust and can be supportive.

Forgive yourself.

The act of forgiving includes forgiving yourself. Failings of the past are not a reflection of your worth.

If you are suffering any of the debilitating effects of unforgiveness, it is a great day to relieve yourself and others of the tremendous burden of holding on to hurt.  And if you need a professional to speak with about any of the physical effects you are feeling, find them in HealthLynked.

In our novel HealthCare ecosystem, we are connecting physicians and patients in unique ways.  Lower the stress and confusion of seeing a provider and sharing relevant health information through HealthLynked.

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Definitions

Immune response: How your immune system recognizes and defends itself against bacteria, viruses, toxins and other harmful substances. A response can include anything from coughing and sneezing to an increase in white blood cells, which attack foreign substances.

Post-traumatic stress disorder (PTSD): A disorder in which your “fight or flight,” or stress, response stays switched on, even when you have nothing to flee or battle. The disorder usually develops after an emotional or physical trauma, such as a mugging, physical abuse or a natural disaster. Symptoms include nightmares, insomnia, angry outbursts, emotional numbness, and physical and emotional tension.

 

Sources:

[1] Worthington, Everett & Witvliet, Charlotte & Pietrini, Pietro & J Miller, Andrea. (2007). Forgiveness, Health, and Well-Being: A Review of Evidence for Emotional Versus Decisional Forgiveness, Dispositional Forgivingness, and Reduced Unforgiveness. Journal of behavioral medicine. 30. 291-302. 10.1007/s10865-007-9105-8.

[2]Meisner-Morton, Carole J.  Entering Your Own Heart: A Guide to Developing Self Love, Inner Peace and Happiness.  Balboa Press. 2015.

[3] HopkinsMedicine.org

[4] WisdomTimes.com

 

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Title:  forgiveness fills your life with research proven health benefits.

 

Five [PLUS] Senses Working Overtime. Are You Tuned In…?

Today is Celebration of the Senses Day – a time to consider your amazing sensory abilities and how they interrelate. We all learn as children humans have five basic senses: touch, sight, hearing, smell and taste. Science has done a fantastic job describing the organs associated with each, how they send information to the brain to help us understand and perceive the world around us, and has gone even further to uncover how they uniquely cross-talk for heightened awareness.

Touch

Touch is thought to be the first sense humans develop, according to the Stanford Encyclopedia of Philosophy. Touch consists of several distinct sensations communicated to the brain through specialized neurons in the skin. Pressure, temperature, light touch, vibration, pain and other sensations are all part of the touch sense and are all attributed to different receptors in the skin.

Touch isn’t just a sense used to interact with the world; it also seems to be very important to a human’s well-being. For example, touch has been found to convey compassion from one human to another.

Touch can also influence how humans make decisions. Texture can be associated with abstract concepts, and touching something with a texture can influence the decisions a person makes, according to six studies by psychologists at Harvard University and Yale University, published in the June 24, 2010, issue of the journal Science.

“Those tactile sensations are not just changing general orientation or putting people in a good mood,” said Joshua Ackerman, an assistant professor at the Massachusetts Institute of Technology. “They have a specific tie to certain abstract meanings.”

Sight

Sight, or perceiving things through the eyes, is a complex process. First, light reflects off an object to the eye. The transparent outer layer of the eye – the cornea – bends the light that passes through the hole of the pupil. The iris (the colored part of the eye) works like the shutter of a camera, retracting to shut out light or opening wider to let in more light.

The cornea focuses most of the light. Then, it passes through the lens, which continues to focus the light.  The lens of the eye then bends the light and focuses it on the retina, which is full of nerve cells. These cells are shaped like rods and cones and are named for their shapes. Cones translate light into colors, central vision and details. The rods translate light into peripheral vision and motion. Rods also give humans vision when there is limited light available, like at night. The information translated from the light is sent as electrical impulses to the brain through the optic nerve.

People without sight may compensate with enhanced hearing, taste, touch and smell, according to numerous studies. Their memory and language skills may be better than those with sight, as well.

“Even in the case of being profoundly blind, the brain rewires itself in a manner to use the information at its disposal so that it can interact with the environment in a more effective manner.”  That’s according to Dr. Lotfi Merabet, senior author of a 2017 study and the director of the Laboratory for Visual Neuroplasticity at Schepens Eye Research Institute of Massachusetts Eye and Ear.

Hearing

This sense works via the complex labyrinth that is the human ear. Sound is funneled through the external ear and piped into the external auditory canal. Then, sound waves reach the tympanic membrane, or eardrum. This is a thin sheet of connective tissue that vibrates when sound waves strike it.

The vibrations travel to the middle ear. There, auditory ossicles — three tiny bones called the malleus (hammer), incus (anvil) and stapes (stirrup) — vibrate. The stapes bone, in turn, pushes a structure called the oval window in and out, sending vibrations to the organ of Corti.  This spiral organ is the receptor organ for hearing. Tiny hair cells in the organ of Corti translate the vibrations into electrical impulses. The impulses then travel to the brain via sensory nerves.

People retain their sense of balance because the Eustachian tube, or pharyngotympanic tube, in the middle ear equalizes the air pressure there with the air pressure in the atmosphere. The vestibular complex, in the inner ear, is also important for balance, because it contains receptors that regulate a sense of equilibrium. The inner ear is connected to the vestibulocochlear nerve, which carries sound and equilibrium information to the brain.

Smell

Humans may be able to smell over 1 trillion scents, according to researchers. They do this with the olfactory cleft, which is found on the roof of the nasal cavity, next to the “smelling” part of the brain – the olfactory bulb and fossa. Nerve endings in the olfactory cleft transmit scents to the brain, according to the American Rhinologic Society.

Dogs are known as great smellers, but research suggests humans are just as good as man’s best friend. Research published in the May 11, 2017, issue of the journal Science suggests humans can discriminate among 1 trillion different odors; it was once believed humans could discern only about 10,000 different smells.

“The fact is the sense of smell is just as good in humans as in other mammals, like rodents and dogs,” John McGann, a neuroscientist at Rutgers University-New Brunswick in New Jersey and the author of the new review, said in a statement. The Rutgers study backs up a previous study at the Rockefeller University in New York, whose findings were published in the March 2014 issue of the journal Science.

Humans have 400 smelling receptors. While this isn’t as many as animals that are super smellers have, the much more complicated human brain makes the difference.  In fact, poor smelling ability in people may be a symptom of a medical condition or aging. For example, the distorted or decreased ability to smell is a symptom of schizophrenia and depression. Old age can also lessen the ability to smell properly. More than 75 percent of people over the age of 80 years may have major olfactory impairment, according to a 2006 paper published by the National Institutes of Health (NIH).

Taste

The gustatory sense is usually broken down into the perception of four different tastes: salty, sweet, sour and bitter. There is also a fifth taste, defined as umami or savory. There may be many other flavors not yet discovered. Also, spicy is not a taste. It is actually a pain signal, according to the National Library of Medicine (NLM).

The sense of taste aided in human evolution, according to the NLM, because taste helped people test the food they ate. A bitter or sour taste indicated that a plant might be poisonous or rotten. Something salty or sweet, however, often meant the food was rich in nutrients.

Taste is sensed in the taste buds. Adults have 2,000 to 4,000 taste buds. Most of them are on the tongue, but they also line the back of the throat, the epiglottis, the nasal cavity and the esophagus. Sensory cells on the buds form capsules shaped like flower buds or oranges. The tips of these capsules have pores that work like funnels with tiny taste hairs. Proteins on the hairs bind chemicals to the cells for tasting.

It is a myth that the tongue has specific zones for each flavor. The five tastes can be sensed on all parts of the tongue, although the sides are more sensitive than the middle. About half of the sensory cells in taste buds react to several of the five basic tastes. The cells differ in their level of sensitivity. Each has a specific palette of tastes with a fixed ranking, so some cells may be more sensitive to sweet, followed by bitter, sour and salty, while others have their own rankings. The full experience of a flavor is produced only after all of the information from various parts of the tongue is combined.

The other half of the sensory cells are specialized to react to only one taste. It’s their job to transmit information about the intensity — how salty or sweet something tastes.

Other factors help build the perception of taste in the brain. For example, the smell of the food greatly affects how the brain perceives the taste. Smells are sent to the mouth in a process called olfactory referral. This is why someone with a stuffy nose may have trouble tasting food properly. Texture, translated by the sense of touch, also contributes to taste, and recent studies even show color and shape can affect the way we perceive a properly attribute taste to a food.

The sense of space

In addition to the traditional big five, other senses help us translate a myriad of inputs into how we perceive and relate to the physical world.  One deals with how your brain understands where your body is in space. This sense is called proprioception.

Proprioception includes the sense of movement and position of our limbs and muscles. For example, proprioception enables a person to touch their finger to the tip of their nose, even with their eyes closed. It enables a person to climb steps without looking at each one. People with poor proprioception may be clumsy and uncoordinated.

Researchers at the NIH found that people who have particularly poor proprioception through mechanosensation — the ability to sense force, such as feeling when someone presses down on your skin — may have a mutated gene that is passed down from generation to generation. That comes from a September 2016 study in the New England Journal of Medicine. “The patient’s version of [the gene] PIEZO2 may not work, so their neurons cannot detect touch or limb movements,” said Alexander Chesler, a principal investigator at the National Center for Complementary and Integrative Health and the lead author of the study.

Additional senses & variations

There are more-subtle senses that most people never really perceive. For example, there are neuron sensors that sense movement to control balance and the tilt of the head. Specific kinesthetic receptors exist for detecting stretching in muscles and tendons, helping people to keep track of their limbs. Other receptors detect levels of oxygen in certain arteries of the bloodstream.

While our five  basic sense seem to operate independently, as distinct modes of perceiving the world, in reality, they collaborate closely to enable the mind to better understand our surroundings. We can become keenly aware of this collaboration under special conditions.

In some cases, a sense may covertly influence another we think is dominant. When visual information clashes with that from sound, sensory crosstalk can cause what we see to alter what we hear. When one sense drops out, another can pick up the slack.  For instance, people who are blind can train their hearing to play double duty. Those who are both blind and deaf can train touch to step in—even to help them interpret speech.

Our senses must also regularly meet and greet in the brain to provide accurate impressions of the world. Our ability to perceive the emotions of others relies on combinations of cues from sounds, sights and even smells.  Perceptual systems, particularly smell, connect with memory and emotion centers to enable sensory cues to trigger feelings and recollections, and are incorporated within them.

The crosstalking of the senses provides some of the most magnificent material for interesting science, illusions, inventions and just plain art.  Here are a few of the best examples of the complex interactions – and extraordinary feats – of our cross-wired senses.

Calling to See

Bats and dolphins, among other animals, emit sounds into their surroundings —not to communicate with other bats and whales — but to “see” what is around them.  They read echoes of the sound waves, which bounce off objects, to identify and locate objects.

This sensory system is called echolocation. Although most of us can only imagine the pictures that form from sound, some sightless people have managed to master a form of echolocation. By uttering sounds and clicks, these individuals can use their ears to navigate. Some, such as Daniel Kish, have even taught others to use this form of human sonar. Kish once described human echolocation as “something like seeing the world in dim flashes of light.”

Fingers Do the Hearing 

People who are both deaf and blind are incredibly good at using other senses, such as touch, to navigate and understand the world. Some use the Tadoma Speechreading Method to perceive speech by touching the lips of another person as they talk. First taught in the 1920s, lip-reading by touch was a popular form of communication among the deafblind. Helen Keller was one of its early adopters.

If taught early in development, the Tadoma Method can help a deaf-blind child learn to speak as well as to understand others. Those who lose their sight and hearing later in life can use it to read lips.

But because the method is extremely difficult and time consuming to learn, by the 1950s it began to lose ground to American Sign Language as the dominant teaching method. Today, only about 50 people in the world still use of the Tadoma Method.

Still, In ASL, the deaf-blind place their hands over another signer’s hands and follow the motions with their fingers—which is easier because the movements are far less subtle.

Beep Baseball

Blind baseball seems almost impossible to even imagine, but since 1975, when a few blind Minnesotans invented “beep baseball”, those who lack sight have taken part in America’s favorite pastime. Thanks to a one-pound beeping oversized softball and some tweaks to the game, players can hit a home run without ever seeing the ball. They use the sound the ball emits to orient themselves, make contact using a bat and to field.  Special bases make it possible to round the diamond. They might be particularly well-suited to this form of the game, as previous research suggests that blind individuals can more easily localize sounds than sighted people can.

Then there is synesthesia

For a few individuals with a condition called synesthesia, the senses collide dramatically and uniquely to form a kaleidoscope world in which chicken tastes like stars, a symphony smells of fresh baked bread or words are bathed in red, green or purple.

People with synesthesia have a particularly curious cross wiring of the senses in which activating one sense spontaneously triggers another. They see colors when they hear noises, associate particular personalities with days of the week, or hear sounds when they see moving dots.

Synesthesia is thought to be genetic, and recent research even suggests it may confer an evolutionary advantage.  Most synesthetes don’t notice anything strange about the way they perceive their environments until it is brought to their attention.

Given that, at any moment in time, we are bombarded by such a diverse combination of sensory experiences, our appreciation of the individual senses can become somewhat muddled. Our taste experience is affected by the smell, texture and temperature of our food. Similarly, our hearing is said to decrease after overeating, and our sight is affected by noises around us. Sight can also be hampered after eating fatty foods.

Here’s another interesting snippet – if a sad, depressed person tells you their world is dull and grey, and flowers have lost their smell, they’re not just speaking metaphorically. Research shows sensory perception can actually be diminished in depressed individuals.  So focussing on a renewed appreciation of your senses can actually help one get out of an emotional rut.

Five senses? More than ten!

The categorization of our five primary senses (sight, smell, hearing, taste and touch) is attributed to Aristotle. While this basic list is still valid, humans have a number of additional ‘sensory abilities’ not covered above. These secondary senses include:

  • Sense of balance and acceleration– the ability to sense body movement, direction and acceleration, and to maintain balance and equilibrium.
  • Temperature sense– the ability to sense heat and the absence of heat (cold).
  • Sense of Pain– the sense of pain was previously believed to be an overloading of pressure receptors, but it has since been identified as a distinct phenomenon that intertwines with the other senses, including touch.
  • Sense of Time– the ability to perceive the passage of time, both short passages as well as longer time cycles.

We are gifted with a complex system of basic and intertwined senses designed to help us take it all in….If any of these seem a little “off” for you, consider seeing a physician who can help you with a tune up….At HealthLynked, we work every day to get you connected with physicians who will really have a great “sense” for what is going on….

Take a brief moment to get a “taste” for how being at the center of your care using the first ever HealthCare social ecosystem will, well, make you “feel”.  Go to HealthLynked.com to get started for free!

Sources:

livescience.com

idahoptv.org

 

14 Injections of Fact and Folklore Surrounding the first “Killed” Vaccine

Just 60 years ago, polio was one of the most feared killers in the U.S.

Every year, as the warmer months approached, panic over polio intensified. Late summer was dubbed “polio season.” Public swimming pools were shut down. Movie theaters urged patrons not to sit too close together to avoid spreading the disease. Insurance companies started selling polio insurance for newborns.

The fear was well grounded. By the 1950s, polio had become one of the most serious communicable diseases among children in the United States. In 1952 alone, nearly 60,000 children were infected with the virus; thousands were paralyzed, and more than 3,000 died. Hospitals set up special units with iron lung machines to keep polio victims alive.

Then in 1955, the U.S. began widespread vaccinations. By 1979, the virus had been completely eliminated across the country. Now polio is on the verge of being eliminated from the world. The virus remains endemic in only two parts of the globe: northern Nigeria and the border between Afghanistan and Pakistan.

On this day, June 23rd, 1995, the creator of the first ever “killed” vaccine, which started the US down the path of eliminating the disease, died. Dr. Jonas Salk was 80 years old. Here are a few facts about the medical genius and the disease he and his colleagues worked to eradicate.

Although polio was the most feared disease of the 20th century, it was hardly the top killer.
The first major polio epidemic in the United States hit Vermont in 1894 with 132 cases. A larger outbreak struck New York City in 1916, with more than 27,000 cases and 6,000 deaths. As the number of polio cases grew, the paralytic disease changed the way Americans looked at public health and disability.

Polio, while definitely on a meteoric rise in the 1950’s, was not the rampant killer it has been portrayed to be. During the 50s and 60s, 10 times as many children died in accidents and three times as many succumbed to cancer. Polio inspired such fear because it struck without warning, and researchers were unsure of how it spread from person to person. In the years following World War II, polls found the only thing Americans feared more than polio was nuclear war.

Salk was rejected by multiple laboratories after medical school.
After graduating from medical school at New York University and completing his residency training, Salk applied to laboratories to work in medical research. Rather than treat patients as a practicing physician, Salk hoped to work on the influenza vaccine, a research area he began studying in medical school.

Although he was rejected from multiple labs, perhaps due to quotas that discriminated against Jewish people, he didn’t get discouraged. “My attitude was always to keep open, to keep scanning. I think that’s how things work in nature. Many people are close-minded, rigid, and that’s not my inclination,” he revealed in his Academy of Achievement interview.

Franklin D. Roosevelt and Harry Truman proved instrumental in the vaccine’s development.
A year after his nomination as a Democratic vice presidential candidate, rising political star Franklin D. Roosevelt contracted polio while vacationing at his summer home on Campobello Island in 1921. The disease left the legs of the 39-year-old future president permanently paralyzed. In 1938, five years after entering the White House, Roosevelt helped to create the National Foundation for Infantile Paralysis, later renamed the March of Dimes Foundation, which became the primary funding source for Salk’s vaccine trials. Employing “poster children” and enlisting the star power of celebrities from Mickey Rooney to Mickey Mouse, the grassroots organization run by Roosevelt’s former Wall Street law partner Basil O’Connor was raising more than $20 million per year by the late 1940s.

In 1946, President Harry Truman declared polio a threat to the United States and called on Americans to do everything possible to combat it. “The fight against infantile paralysis cannot be a local war,” Truman declared in a speech broadcast from the White House. “It must be nationwide. It must be total war in every city, town and village throughout the land. For only with a united front can we ever hope to win any war.”

Science initially failed
Early attempts to develop a vaccine ran into numerous hurdles. A vaccine tested on 10,000 children by two researchers at New York University provided no immunity and left nine children dead. Other vaccine trials used “volunteers” at mental institutions.

Salk challenged prevailing scientific orthodoxy in his vaccine development.
While most scientists believed that effective vaccines could only be developed with live viruses, Salk developed a “killed-virus” vaccine by growing samples of the virus and then deactivating them by adding formaldehyde so that they could no longer reproduce. By injecting the benign strains into the bloodstream, the vaccine tricked the immune system into manufacturing protective antibodies without the need to introduce a weakened form of the virus into healthy patients.

Many researchers, such as Polish-born virologist Albert Sabin, who was developing an oral “live-virus” polio vaccine, called Salk’s approach dangerous. Sabin even belittled Salk as “a mere kitchen chemist.” The hard-charging O’Connor, however, had grown impatient at the time-consuming process of developing a live-virus vaccine and put the resources of the March of Dimes behind Salk.

Since Sabin and Cincinnati Children’s Hospital couldn’t gain political support in the U.S. for what he viewed as his superior vaccine, he moved testing to the Soviet Union instead.

Salk tested the vaccine on himself and his family.
After successfully inoculating thousands of monkeys, Salk began the risky step of testing the vaccine on humans in 1952. In addition to administering the vaccine to children at two Pittsburgh-area institutions, Salk injected himself, his wife and his three sons in his kitchen after boiling the needles and syringes on his stovetop. Salk announced the success of the initial human tests to a national radio audience on March 26, 1953.

The clinical trial was the biggest public health experiment in American history.
On April 26, 1954, six-year-old Randy Kerr was injected with the Salk vaccine at the Franklin Sherman Elementary School in McLean, Virginia. By the end of June, an unprecedented 1.8 million people, including hundreds of thousands of schoolchildren, joined him in becoming “polio pioneers.” For the first time, researchers used the double-blind method, now standard, in which neither the patient nor person administering the inoculation knew if it was a vaccine or placebo. Although no one was certain that the vaccine was perfectly safe—in fact, Sabin argued it would cause more cases of polio than it would prevent—there was no shortage of volunteers.

Salk did not patent his vaccine.
On April 12, 1955, the day the Salk vaccine was declared “safe, effective and potent,” legendary CBS newsman Edward R. Morrow interviewed its creator and asked who owned the patent. “Well, the people, I would say,” said Salk in light of the millions of charitable donations raised by the March of Dimes that funded the vaccine’s research and field testing. “There is no patent. Could you patent the sun?” Lawyers for the foundation had investigated the possibility of patenting the vaccine but did not pursue it, in part because of Salk’s reluctance.

Although a tainted batch of the Salk vaccine killed 11 people, Americans continued vaccinating their children.
Just weeks after the Salk vaccine had been declared safe, more than 200 polio cases were traced to lots contaminated with virulent live polio strains manufactured by the Cutter Laboratories in Berkeley, California. Most taken ill became severely paralyzed. Eleven died. In the haste to rush the vaccine to the public, the federal government had not provided proper supervision of the major drug companies contracted by the March of Dimes to produce 9 million doses of vaccine for 1955. Although the United States surgeon general ordered all inoculations temporarily halted, Americans continued to vaccinate themselves and their children. Outside of the “Cutter Incident,” not a single case of polio attributed to the Salk vaccine was ever contracted in the United States.

A rival vaccine supplanted Salk’s in the 1960s.
Once Sabin’s oral vaccine finally became available in 1962, it quickly supplanted Salk’s injected vaccine because it was cheaper to produce and easier to administer. Ultimately, both vaccines produced by the bitter rivals nearly eradicated the disease from the planet. According to the World Health Organization (WHO), there were only 416 reported cases of polio worldwide in 2013, mostly confined to a handful of Asian and African countries. Since Sabin’s live-virus vaccine, which is responsible for about a dozen cases of polio each year, is seen as the final obstacle to eliminating the disease in most of the world, the WHO has urged polio-free countries to return to Salk’s killed-virus vaccine.

Salk was the stepfather of Pablo Picasso’s Children
In 1970, Salk married Françoise Gilot, a French artist who had two children, Claude and Paloma, with Pablo Picasso. In an interview in 1980, Paloma remembered the fear people had of polio, and that as a child, she didn’t visit her father’s house in the South of France due to a polio outbreak. She also revealed that she got along well with her stepfather: “He’s very cute. He’s a wonderful person,” she said. After his death in 1995, Gilot continued her late husband’s legacy by working at the Salk Institute for Biological Studies.

Salk worked on cures for cancer and AIDS
After Salk developed the polio vaccine, he tried to develop vaccines for cancer, AIDS, and multiple sclerosis. Although he wasn’t ultimately successful, he did patent Remune, a vaccine for AIDS to delay the progression of HIV into AIDS. In 2001, six years after Salk died, Pfizer stopped funding clinical trials for Remune due to a lack of evidence that it worked.

Salk was much maligned by the medical community
At the University of Pittsburgh, Salk launched what was then the largest human trial in history and introduced new scientific rigor now used as the gold standard in development of new treatments and tests for pathology. When it was announced that his vaccine worked, Salk was hailed as a humanitarian hero. By 1957, new polio cases had fallen below 6,000.

While heads of state around the globe rushed to celebrate him, many in the medical community derided his efforts. According to Dr. Charlene Jacobs in a interview with the Oxford Press, this was for many reasons:

  1. He preferred the “killed” vaccine, which most in medicine feared would be too weak.
  2. He worked in secret and with a small team.
  3. They claimed he grabbed the limelight and failed to share credit with others.
  4. It appeared he pandered to the press, crossing an imaginary line medicine had set up between science and the media.

Salk won few awards for what is still considered one of the greatest medical breakthroughs
While nominated several times, he did not win the Nobel Peace prize, and he was blackballed from the Academy of Sciences. He won a great deal of social celebrity, for sure, but his insistence on using intuition as much as rigor left many wondering what he really was doing. His dismissal in actual scientific communities is attributed to envy by many who review the history of the time.

Over the years, polio was found to be a highly contagious disease that spread, not in movie theaters or swimming pools, but from contact with water or food contaminated from the stool of an infected person. Along with the vaccine, much was done to improve hygiene in the Americas, The U.S. recorded its last case of polio in 1979, among isolated Amish communities in several states. Then the effort to eradicate polio globally began in earnest. The Western Hemisphere reported its last case, in Peru, in 1991.

Both Salk’s and Sabin’s vaccines are still used today. Although Jonas Salk is credited with ending the scourge of polio because his killed-virus vaccine was first to market, Albert Sabin’s sweet-tasting and inexpensive oral vaccine continues to prevent the spread of poliomyelitis in remote corners of the world. While the later version, which requires just two drops in a child’s mouth, proved much easier to use in mass immunization campaigns, today, it is being marked as the final barrier to truly eliminating polio – it does occasionally infect patients. The complete return to Salk’s vaccine has been promoted by the World Health Organization (WHO) since 2000.

Advances in medicine sometimes come from great intuition complimented with heavy doses of experience and meaningful development. These three make a powerful elixir. HealthLynked could be that kind of breakthrough – a good mix of real world wisdom, a touch of intuition and a love of professional rigor.

At HealthLynked, we are all working to clean up the errors created by missing information and put the patient back at the center of the medical relationship. Ready to get Lynked with medical professionals advancing wellness in New and exciting ways?

Go to HealthLynked.com to get started unlocking better health today!

 

sources:

npr.org

pbs.org

Nytimes.com

.

14 Bolts of Inside[r] Info on Lightning | National Safety News

This weekend, for Father’s Day, I had the opportunity to celebrate early with my oldest, her husband and their newborn.  They asked me what I wanted to do, and I volunteered a boat ride to a distant restaurant on the lake we all love.  I say this, but I know my wife, wisely, does not always enjoy the ride, mostly because of the wicked weather that often kicks up on the warm afternoons where we live.

We always check the satellite and motored out after seeing we were clear for the rest of the day.  After dinner, we checked again before shoving off to see a few storms were popping up about 45 miles away.  NO threat to our return leg.

As we headed home, a cloud to the east, where we were headed, started to take on a more ominous shape and started spitting a little rain.  Then, it deeply darkened, and streaks of lightning shot to earth underneath.

We skirted the storm for 30 minutes and headed to a place we knew we could find shelter.  We hunkered down for about an hour, then headed home, a little more tired but safe after the slight scare.  While we did a lot of things right, I recognize now, we also were at significant risk.  The wide eyed look of my granddaughter will always remind me of this.

Summertime across the country means barbecues, festivals, sporting events, boating, hitting the beach, camping, and many other recreational activities. In short, summertime means a lot more people are spending a lot more time in the great outdoors.

We always look forward to the outdoor adventuring this time of the year brings, but it is also the peak season for one of the nation’s deadliest weather phenomena — lightning. Lightning typically receives less attention than other storm-related killers because it does not result in mass destruction or mass casualties like tornadoes, floods, tsunamis or hurricanes often do.

Consider these lightning statistics:

  • About 25 million cloud-to-ground lightning strikes occur in the United States each year. Around the globe, there are about 100 strikes every second!
  • Over the last 30 years, the U.S. has averaged 51 lightning fatalities per year. The great news:  2017 was the least lethal year since we started recording the stats in 1940, with only 16 deaths.  This is most likely due to increasing awareness.
  • Only about 10% of people struck by lightning are actually killed. The other 90% must cope with varying degrees of discomfort and disability, sometimes for the rest of their lives.
  • People struck by lightning are not electrified! They will need your immediate medical attention or first aid.  Help them immediately.
  • Typically, the vast majority of lightning victims each year are male (in 261 instances from 2006-2013, 81% of lightning fatalities were male and 19% were female).

The purpose of Lightning Safety Awareness Week is to educate and raise awareness about the hazards of lightning in order to lower the number of deaths and injuries caused by lightning strikes. Remember, lightning makes every single thunderstorm a potential killer, whether the storm produces one single bolt or ten thousand bolts. 

 Lightning Fatality Statistics

From 2006 through 2017, 376 people were struck and killed by lightning in the United States.  Almost two thirds of the deaths occurred to people who had been enjoying outdoor leisure activities.  The common belief that golfers are responsible for the greatest number of lightning deaths was shown to be a myth.  During this 12-year period fishermen accounted for more than three times as many fatalities as golfers, while beach activities and camping each accounted for about twice as many deaths as golf.  From 2006 to 2017, there were a total of 34 fishing deaths, 22 beach deaths, 19 camping deaths, and 17 boating deaths.

Of the sports activities, soccer saw the greatest number of deaths with 12, as compared to golf with 10.  Around the home, yard work (including mowing the lawn) accounted for 14 fatalities.  For work-related activities, ranching/farming topped the list with 17 deaths.

Males accounted for 80% of all fatalities, and more than 90% of the deaths in the fishing, sports and work categories.  Females had comparatively fewer deaths than men in every category, with their highest percentages in the boating-related activities (35%) and routine daily/weekly activities (34%).

June, July, and August are the peak months for lightning activity across the United States and the peak months for outdoor summer activities.  As a result, more than 70% of the lightning deaths occurred in the months of June, July, and August, with Fridays, Saturdays, and Sundays having slightly more deaths than other days of the week.

Ages of the victims varied from young children to older adults with the greatest number of fatalities between the ages of 10 and 60.  Within that age range, there was a relative minimum in deaths for people in their 30s, possibly due to parents of young children being less involved in vulnerable activities.

Based on the media reports of the fatal incidents, many victims were either headed to safety at the time of the fatal strike or were just steps away from safety.  Continued efforts are needed to convince people to get inside a safe place before the lightning threat becomes significant.  For many activities, situational awareness and proper planning are essential to safety.

To put this all into perspective, while you are more likely to be struck TWICE  by lightning than win the lottery, you are TWICE as likely to be killed by a dog attack than lightning.  Some small comfort.

Lightning Myths and Facts

 

Myth: A lightning victim is electrified. If you touch him, you’ll risk being electrocuted.
Fact: The human body does not store electricity, and lightning victims require immediate medical attention. It is perfectly safe to touch a lightning victim in order to give them first aid. Call 911 for help.

Myth: If it’s not raining or there aren’t any clouds overhead, you’re safe from lightning.
Fact: Lightning often strikes several miles from the center of a thunderstorm, far outside the rain or thunderstorm cloud. In fact, “bolts from the blue” can strike as far as 25 miles out from the parent thunderstorm. That’s why it’s important to seek shelter at the first indication of a thunderstorm and stay there until 30 minutes after the last clap of thunder.

Myth: The rubber soles of shoes or rubber tires on a car will protect you from a lightning strike.
Fact: Rubber-soled shoes and rubber tires provide NO protection from lightning, but most vehicles with metal tops and sides do provide adequate shelter from lightning because the charge travels through the metal frame and eventually into the ground. Just be sure to avoid contact with anything inside the vehicle that conducts electricity. Remember, convertibles, motorcycles, bicycles, open-shelled outdoor recreational vehicles and cars with fiberglass shells offer no protection from lightning.

Myth: “Heat Lightning” occurs after very hot summer days and poses no threat.
Fact: Many people incorrectly think that “heat lightning” is a specific type of lightning. Actually, it is just lightning from a thunderstorm that is too far away for any thunder to be heard (thunder is seldom heard beyond 10 miles under ideal conditions). If the storm approaches, the same lightning safety guidelines above should be followed.

Myth: Lightning never strikes the same place twice.
Fact: Lightning often strikes the same place or object repeatedly, especially if it’s tall, pointy, and isolated. The Empire State Building is struck by lightning nearly 100 times each year.

Myth: If caught outside during a thunderstorm, you should seek shelter under a tree.
Fact: Seeking shelter under a tree is one of the leading causes of lightning related fatalities. Remember, NO PLACE outside is safe when thunderstorms are in the area. If you are caught outside in a thunderstorm, keep moving toward a safe shelter.

Myth: Metal structures or metal on the body (jewelry, watches, etc.) attract lightning.
Fact: The presence of metal has no bearing on where lightning will strike. Mountains are made of rock but get struck by lightning many times a year. Rather, an object’s height, shape, and isolation are the dominant factors that affect its likelihood of being struck by lightning. While metal does not attract lightning, it obviously does conduct electricity, so stay away from metal fences, railings, bleachers, etc. during a thunderstorm.

Myth: If caught outside during a thunderstorm, you should lie flat on the ground.
Fact: NO PLACE outside is safe when thunderstorms are in the area. If you are caught outside in a thunderstorm, keep moving toward a safe shelter.

 Lightning Safety Guidelines

Lightning is one of the most erratic and unpredictable characteristics of a thunderstorm. Because of this, no one can guarantee an individual or group absolute protection from lightning. However, knowing and following proven lightning safety guidelines can greatly reduce the risk of injury or death.

Most lightning victims are not struck during the worst of a thunderstorm but rather before or after the storm reaches its greatest intensity. This is because many people are unaware that lightning can strike as far as 25 miles away from its parent thunderstorm – much farther out from the area of rainfall within the storm!  “Blue sky” lightning is common at 10 miles from an area storm.

Therefore, if you can hear thunder, you are within striking distance. Seek safe shelter immediately. Remember this lightning safety rule: WHEN THUNDER ROARS, GO INDOORS…and stay there until 30 minutes after the last clap of thunder. Do not wait for the rain to start before you decide to seek shelter, and do not leave shelter just because the rain has ended.

The best way to protect yourself and your family from the dangers of thunderstorms is to be prepared. If you have outdoor plans, be sure to familiarize yourself with the latest weather forecast before heading out. Upon arriving on-site, determine where you will seek shelter in the event of a thunderstorm and how long it would take to reach that shelter. A sturdy, enclosed structure with plumbing and electrical wiring is safest, but if one is not available most enclosed metal vehicles are safe alternatives.

Cancel or postpone outdoor activities if thunderstorms develop.  During your outdoor activities, keep an eye to the sky for developing thunderstorms. If thunder is heard, if lightning is seen, or even if thunderclouds are developing, get to your place of shelter without delay! Have a lightning safety plan.

WHERE NOT TO GO:

Not all types of buildings or vehicles are safe during thunderstorms. Buildings with exposed sides are NOT safe(even if they are “grounded”). These include beach shacks, metal sheds, picnic shelters/pavilions, carports, and baseball dugouts. Porches are dangerous as well.

Convertible vehicles offer no safety from lightning, even if the top is up. Other vehicles which are NOT safe during thunderstorms are those with open cabs, such as golf carts, tractors, and construction equipment.

WHERE TO GO:

The safest location during a thunderstorm is inside a large enclosed structure with plumbing and electrical wiring. These include shopping centers, schools, office buildings, and private residences. If lightning strikes the building, the plumbing and wiring will conduct the electricity and eventually direct it into the ground.

If no substantial buildings are available, then an enclosed metal vehicle such as an automobile, van, or school bus would be a suitable alternative.

While being inside a house or other building with electrical wiring and plumbing is your safest option during a thunderstorm, it does not guarantee you will be 100% safe from lightning. There are still some lightning safety guidelines you must follow while inside a place of shelter to keep yourself safe.

  • Don’t use corded phones:  Using a corded phone during a thunderstorm is one of the leading causes of indoor lightning injuries. However, it IS safe to use cordless or cell phones as long as they are not being charged.
  • Stay away from windows and doors:Sitting on an open porch to watch a thunderstorm is also dangerous. It is best to be in an interior room during a thunderstorm.
  • Don’t touch electrical equipment or cords:  Any device that uses electricity (e.g. computers, televisions, household appliances, etc.) is susceptible to a lightning strike. Electrical surges caused by lightning can damage electronics (even at some distance from the actual strike), and a typical surge protector will do little to protect the device (or the person using it) if lightning should strike. So, consider unplugging certain appliances or electronics, but for your own safety do this BEFORE the storm arrives.
  • Avoid plumbing:  Metal plumbing and the water inside are both very good conductors of electricity. Therefore, do not wash your hands or dishes, take a shower or bath, do laundry, etc. during a thunderstorm.
  • Refrain from touching concrete surfaces:Lightning can travel through the metal wires or bars in concrete walls and flooring, such as in the basement or garage.
  • If inside a vehicle:  Roll the windows up and avoid contact with any conducting paths leading to the outside of the vehicle (e.g. metal surfaces, ignition, portable electronic devices plugged in for charging, etc.).

While we won’t be there to warn you of an impending strike, we will always be there with Ready medical Information if you ever need to call for emergency services.  With HealthLynked, you are able to compile and safely collate all of your medical information in one convenient place should you ever need to access it fast.

Come in out of the rain and steer clear of the storm of finding a physician just right for you.  Go to HealthLynked.com today to sign up for Free and take comfort knowing your health information is with you wherever you may go….

Stay safe!

Sources:

weather.gov

nationalgeographic.com

  

 

 

 

World Sickle Cell Day | Symptoms and Emerging New Treatments

Approximately 70,000 to 100,000 Americans have sickle cell disease.  Though rare, it is the the most common form of inherited blood disorders. In Africa, the burden is much higher – Sub-Saharan Africa has an estimated 64% of the 300, 000 people born annually with sickle cell disease in the world,  Sickle Cell Day each June 19th provides an opportunity to examine progress and persistent challenges in managing the disease.

Sickle Cell, present in affected individuals at birth, causes the production of abnormal hemoglobin. Normal hemoglobin protein, which resides inside red blood cells, attaches to oxygen in the lungs and carries it to all parts of the body. Healthy red blood cells are flexible enough to move through the smallest blood vessels.

In sickle cell disease, the hemoglobin is abnormal, causing red blood cells to be rigid and shaped like a sickle – the shape from which the disease takes its name.  In order for a child to inherit sickle cell disease, both parents must have either sickle cell disease (two sickle cell genes) or sickle cell trait (one sickle cell gene). There are variations of sickle cell disease called sickle C or sickle thalassemia, which are serious conditions but sometimes less severe. If you have sickle cell disease, you will pass one sickle cell gene to your children.

Signs and symptoms of sickle cell disease usually begin in early childhood. Characteristic features of this disorder include a low number of red blood cells (anemia), repeated infections, and periodic episodes of pain. The severity of symptoms varies from person to person. Some people have mild symptoms, while others are frequently hospitalized for more serious complications.

Sickle cells can get stuck and block blood flow, causing pain and infections. Complications of sickle cell disease occur because the sickled cells block blood flow to specific organs. The worst complications include stroke, acute chest syndrome (a condition that lowers the level of oxygen in the blood), organ damage, other disabilities, and even premature death.

These signs and symptoms of sickle cell disease are caused by the “sickling” of red blood cells. When red blood cells sickle, they also break down prematurely, which can lead to anemia. Anemia can cause shortness of breath, fatigue, and delayed growth and development in children. The rapid breakdown of red blood cells may also cause yellowing of the eyes and skin, which are signs of jaundice.

Painful episodes can occur when sickled red blood cells- stiff and inflexible – get stuck in small blood vessels. These episodes deprive tissues and organs of oxygen-rich blood and can lead to organ damage, especially in the lungs, kidneys, spleen, and brain.

A particularly serious complication of sickle cell disease is high blood pressure in the blood vessels that supply the lungs (pulmonary hypertension). Pulmonary hypertension occurs in about one-third of adults with sickle cell disease and can lead to heart failure.

Mutations in the HBB gene cause sickle cell disease.

Hemoglobin consists of four protein subunits; typically, two alpha-globin subunits and two beta-globin subunits. The HBB gene provides instructions for making beta-globin. Variations of beta-globin result from different mutations in the HBB gene. One particular HBB gene mutation produces an abnormal version of beta-globin known as hemoglobin S (HbS). Other mutations in the HBB gene lead to additional abnormal versions of beta-globin, such as hemoglobin C (HbC) and hemoglobin E (HbE). HBB gene mutations can also result in an unusually low level of beta-globin; this abnormality is called beta thalassemia.

In people with sickle cell disease, at least one beta-globin subunit in hemoglobin is replaced with hemoglobin S. In sickle cell anemia, hemoglobin S replaces both beta-globin subunits in hemoglobin.

In other types of sickle cell disease, just one beta-globin subunit in hemoglobin is replaced with hemoglobin S.  The other beta-globin subunit is replaced with a different abnormal variant, such as hemoglobin C.  For example, people with sickle-hemoglobin C (HbSC) disease have hemoglobin molecules with hemoglobin S and hemoglobin C instead of beta-globin.  If mutations that produce hemoglobin S and beta thalassemia occur together, individuals have hemoglobin S-beta thalassemia (HbSBetaThal) disease.

Sickle Cell Trait

Sickle cell trait is an inherited blood disorder that affects approximately 8 percent of African-Americans. Unlike sickle cell disease, in which patients have two genes that cause the production of abnormal hemoglobin, individuals with sickle cell trait carry only one defective gene and typically live normal lives without health problems related to sickle cell. Rarely, extreme conditions such as severe dehydration and high-intensity physical activity can lead to serious health issues, including sudden death, in individuals with sickle cell trait.

Risk Factors

Sickle cell disease is more common in certain ethnic groups, including:

  • People of African descent, including African-Americans (among whom 1 in 12 carries a sickle cell gene)
  • Hispanic-Americans from Central and South America
  • People of Middle Eastern, Asian, Indian, and Mediterranean descent

Because sickle cell disease symptoms can begin by four months of age, early diagnosis is critical. All newborns in the United States are now tested for the disease. Sickle cell disease can also be identified before birth by testing a sample of amniotic fluid or tissue from the placenta. People who carry the sickle cell gene can seek genetic counseling before pregnancy to discuss options.

Signs and Symptoms

Signs and symptoms of sickle cell disease can be mild or severe enough to require frequent hospitalizations. They may include:

  • Anemia (looking pale)
  • Dark urine
  • Yellow eyes
  • Painful swelling of hands and feet
  • Frequent pain episodes
  • Stunted growth
  • Stroke

Treatment

There are no standard treatments that cure sickle cell disease. However, there are regiments that help people manage and live with the disease. Treatment relieves pain, prevents infections, minimizes organ damage, and controls complications. At times, blood transfusions and other advanced options are needed.

Clinical trials provide access to experimental therapies for treating sickle cell disease. The American Society of Hematology (ASH) provides information on clinical trials for which you may be eligible. Researchers are looking at new drugs and also exploring the use of bone marrow transplants to treat sickle cell disease. Stem cell transplants, associated with significant risks, are appropriate only for some patients with severe forms of sickle cell disease and closely matched donors –  typically family member.

Beyond this, the completion of the Human Genome Project and the use of CRISPR/Cas9 for gene editing have begun to transform the diagnosis and management of disease. Sickle cell disease has been considered a perfect model for genomic research because: 1) it is a monogenic disease and 2.) it has no cure despite the significant incidence of morbidity and mortality. Recent use of gene editing to minimize disease severity, and a single report of a patient who received successful treatment with gene therapy, highlight the potential for translating genome-based knowledge into health benefits for sickle cell patients.

It is important for you to talk with your doctor if you believe you may have sickle cell disease. If you carry the sickle cell trait, make sure you tell your doctor before getting pregnant as well. Depending on your condition, your doctor may refer you to a hematologist, a doctor who specializes in blood conditions.

Finding the right physician or medical care team just got that much easier.  Using HealthLynked, you can locate physicians in your area who know how to help and are focused on giving you the best possible care.  They will collaborate with you to make sure all your relevant and real time health information is available to enhance your wellness.

Ready to get Lynked?  Got to HealthLynked.com to get started for free today.

 

 

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Week Three of National CMV Awareness Month – “CMV is Preventable”

 

National legislation has been passed designating the month of June as “National Cytomegalovirus Awareness Month” recommending “more effort be taken to counsel women of childbearing age of the effect this virus can have on their children”.   In this thhird week, the theme is “CMV is Preventable”.

The Centers for Disease Control and Prevention (CDC) report that 1 in every 150 children is born with congenital CMV (cytomegalovirus). CMV is the most common congenital (meaning present at birth) infection in the United States and is the most common viral cause of birth defects and developmental disabilities, including deafness, blindness, cerebral palsy, mental and physical disabilities, seizures, and death.

CMV is a common virus, present in saliva, urine, tears, blood, and mucus, and is carried by 75 percent of healthy infants, toddlers, preschoolers, and children who contract the virus from their peers. About 60 percent of women are at risk for contracting CMV during pregnancy, posing a major risk to mothers, daycare workers, preschool teachers, therapists, and nurses. The American College of Obstetricians and Gynecologists (ACOG) and the CDC recommend that OB/GYNs counsel women on basic prevention measures to guard against CMV infection. These include frequent hand washing, not kissing young children on the mouth, and not sharing food, towels, or utensils with them.

CMV is Preventable

  • Pregnant women who already have young children, or who work with young children, are at highest risk of catching CMV
  • CMV is found in home and daycare settings
  • 75% of toddlers have CMV in their urine and saliva in studies at childcare settings
  • Avoid contact with saliva – kiss kids under the age of 6 on the forehead instead of lips or cheek
  • Wash your hands after contact with bodily fluids of children under the age of 6
  • Don’t share utensils, drinks, or toothbrushes with children under the age of 6

Want to help raise awareness of CMV?  Join National CMV’s hashtag awareness campaign and share infographcs, photos, and stories on social media!  National CMV maintains a website-based tagboard – a curated public display of all social media posts with the hashtags #stopcmv and #cmvawareness. You can check out the tagboard by simply scrolling down on their homepage!

Each week of June will have a different themed awareness infographic, as well as ideas for a weekly photo that you can post to social media to tell the world about your experience with CMV. They suggest you get creative and be authentic, even if the suggested photos may not apply to your experience–all of our stories are important!

 

 

#KnowAboutCMV

#CMVAwareness

#pregnancy

#patientcare

#StopCMV

#HealthCare

#HealthLynked

 

 

 

Seven Signs of Autism | Autistic Pride Day

The annual Autistic Pride Day is observed each year on June 18 using an ongoing theme of neurodiversity. The pride label – all colors across the spectrum with an infinity symbol –  is intended to encourage a celebration of autistic differences, rather than reinforcing stereotypical perceptions of autism as a disease. Autistic Pride Day educates people directly, drawing on the experiences of autistic people themselves and celebrating autistic lives.  The aim: to promote progress in awareness and recognize the achievements of autistic people.

The first event was celebrated in June 2005, and it is lead by several organizations supporting the children and their families who are living with autism.  Society is still far from understanding and accepting the range of autistic differences, and changing attitudes is a necessary step towards enabling autistic people to lead fulfilling lives without discrimination, allowing them to participate in and contribute to all aspects of society.

What is Autism?

Autism spectrum disorders (ASD) are a set of diverse neural development variables that are characterized most commonly by difficulty with social interactions and behavioral integration while providing potentially heightened or advanced skills in certain areas. The condition starts in childhood, and the characteristics may be visible within the first two years of the child’s development.

Manifested in a range of presentations affecting how an autistic person thinks, learns, uses their senses, moves their body, communicates, and relates to other people, the spectrum is increasingly described by the autistic community, and by some clinicians and researchers, as a condition rather than a disorder.

Prevalence is 1–1·5% of the population – that is 1 in 68 children in the US, according to the US Centers for Disease Control and Prevention.  Autism has previously been thought to be more common in men and boys, but current debates suggest this might be an effect of basing diagnosis on behavior, which varies between sexes. Diagnoses centered on behavioral issues can lack precision, as behavior may be suppressed, camouflaged, and “normalized” by autistic people in order to fit in and avoid social stigma.

Causes of Autism

There is great concern rates of autism have been increasing in recent decades without acceptable explanation as to why.  Scientists believe both genetics and environment likely play a role in ASD. Researchers have identified a number of genes associated with the disorder. Imaging studies of people with ASD have found differences in the development of several regions of the brain.

Studies suggest that ASD could be a result of disruptions in normal brain growth very early in development. These disruptions may be the result of defects in genes that control brain development and regulate how brain cells communicate with each other. Autism is more common in children born prematurely.

Environmental factors may also play a role in gene function and development, but no specific environmental causes have yet been identified. The flawed theory that parental practices are responsible for ASD has long been disproved.

Symptoms of Autism

Neurodiversity encompasses the breadth of autistic characteristics; every person has a unique experience of autistic life. A society that accepts neurodiversity requires cooperation and input from multiple stakeholders, including autistic people, neurologists and mental health professionals, parents, teachers, researchers, and employers. Society needs to embrace neurodiversity in order to accept differences and variation, and to reduce stigma. Mental health professionals can provide interventions and support if there is an understanding of the details of autistic experience.

The  terms “Autistic” and “autism spectrum” often are used to refer inclusively to people who have an official diagnosis on the autism spectrum or who self-identify with the Autistic community. While all Autistics are as unique as any other human beings, they share some characteristics typical of autism:

  1. Different sensory experiences.For example, heightened sensitivity to light, difficulty interpreting internal physical sensations, hearing loud sounds as soft and soft sounds as loud, or synesthesia.
  2. Non-standard ways of learning and approaching problem solving.For example, learning “difficult” tasks (e.g. calculus) before “simple” tasks (e.g. addition), difficulty with “executive functions,” or being simultaneously gifted at tasks requiring fluid intelligence and intellectually disabled at tasks requiring verbal skills.
  3. Deeply focused thinking and passionate interests in specific subjects.“Narrow but deep,” these “special interests” could be anything from mathematics to ballet, from doorknobs to physics, and from politics to bits of shiny paper.
  4. Atypical, sometimes repetitive, movement.This includes “stereotyped” and “self-stimulatory” behavior such as rocking or flapping, and also the difficulties with motor skills and motor planning associated with apraxia or dyspraxia.
  5. Need for consistency, routine, and order.For example, holidays may be experienced more with anxiety than pleasure, as they mean time off from school and the disruption of the usual order of things. People on the autistic spectrum may take intense pleasure in organizing and arranging items.
  6. Difficulties in understanding and expressing language as used in typical communication, both verbal and non-verbal. This may manifest similarly to semantic-pragmatic language disorder. It’s often because a young child does not seem to be developing language that a parent first seeks to have a child evaluated. As adults, people with an autism spectrum diagnosis often continue to struggle to use language to explain their emotions and internal state, and to articulate concepts (which is not to say they do not experience and understand these).
  7. Difficulties in understanding and expressing typical social interaction.For example, preferring parallel interaction, having delayed responses to social stimulus, or behaving in an “inappropriate” manner to the norms of a given social context (for example, not saying “hi” immediately after another person says “hi”).

Diagnosing Autism

An autism diagnosis most commonly takes place in the first 2 years of a child’s life—early detection brings more effective intervention. However, there is a need to improve detection and accommodation of autism in adulthood. A diagnosis late in life can help people to understand why they feel they are different to others, can help to understand accompanying mental health challenges, and may provide the beginning of a helpful clinical pathway—as well as providing clarity, it can be a signpost to relevant support.

Autism is a relatively new diagnosis, becoming widely used only since the 1990s. In the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5), published in May, 2013, the diagnostic criteria were broadened as various diagnostic entities were pulled together.  Pre-school children were included, and prevalence subsequently increased considerably as a range of autistic traits were newly identified as part of the spectrum.

Neurological research in the field remains difficult and sometimes controversial, and there is an ongoing lack of knowledge of the neurological bases for autism. Future understanding of causes, including genetic causes, will hopefully help to shape a more tailored approach to diagnosis and treatment management.

Treatment of Autism

Regarding treatment and societal support, external systems need to adapt to embrace variations in behavior that include adults with late diagnoses. This shift is elusive: Public and even medical perception still has some way to go to embrace differences among those with autism.  Each child or adult with autism is unique and, so, each autism intervention plan should be tailored to address specific needs.

Management can be complex, as people with autism are more likely to have additional mental health diagnoses and higher rates of suicidal ideation. Approaches to intervention need to be highly personalized to suit each individual and to identify comorbidities correctly. Professionals also need to understand and accept neurodiversity—a lack of empathy could lead to a repeat of past approaches that forced people to conform to “normal” behavior, which is neither effective nor acceptable.

There is no cure for autism spectrum disorder, but there are several behavioral and therapeutic interventions that may improve some symptoms.  Intervention can involve behavioral treatments, medicines or both. Many persons with autism have additional medical conditions such as sleep disturbance, seizures and gastrointestinal (GI) distress. Addressing these conditions can improve attention, learning and related behaviors.

Early intensive behavioral intervention involves a child’s entire family, working closely with a team of professionals. In some early intervention programs, therapists come into the home to deliver services. This can include parent training with the parent leading therapy sessions under the supervision of the therapist. Other programs deliver therapy in a specialized center, classroom or preschool.

Typically, different interventions and supports become appropriate as a child develops and acquires social and learning skills. As children with autism enter school, for example, they may benefit from targeted social skills training and specialized approaches to teaching.  Adolescents with autism can benefit from transition services that promote a successful maturation into independence and employment opportunities of adulthood.

Typically, autism treatment involves:

  • Behavioral and educational interventions – this is where therapists use intensive and high structured skills in training an autistic child so that they can improve language and social skills.
  • Medications – the physician may prescribe drugs that can help in management of some of the symptoms, like depression, anxiety and obsessive-compulsive disorder.

Alternatively, or in addition, novel Therapies are being developed.  These therapies, including light and sound treatments, might be introduced to families living with autism.  Some are controversial, and parents should be cautious before adopting any method.

Purpose of Autistic Pride Day

The day helps to create an awareness  in society  around the condition and how it is managed. The day asserts that autism is not a sickness but rather a state in which the individual affected will exhibit varied characteristics that may provide them with challenges or rewards unlike their peers who do not have autism.  Autistic pride day helps in coming up with initiatives where the public is educated on the challenges that are faced by autism community.

Autistic pride day helps in organizing rights movements for people who are living with autism. The movement is usually led by self advocates of autism who ensure that autistic people are given a voice and are recognized in the society. The movement encourages community members to accept people living with autism in the society.

The autistic pride day also provides a good platform for the care giver to be appreciated. The people who take care of autistic children may have diminished physical and emotional energy as they can be drained while responding to the needs of autistic children. Care givers are encouraged to take care of themselves and to get as much help as possible to provide their best while offering their services.

What can be Done on Autistic Pride Day?

Participation on this day may  include providing information to families that include people who live with autism by teaching them on the causes, signs and symptoms , management and treatment. The family members will also be taught how to participate most fully in the life of someone with autism and to embrace their neurodiversity.

You might provide financial support for the organizations that pioneer autism research or volunteer and give to those groups who promote awareness and provide support to families and those with autism.

Caregivers and those with autism can come together and share their stories of life with autism or loving and caring for people with autism. This will help to reduce any stigmas associated with the disorder as each person expresses themselves.

Message Shared on Autistic Pride Day

Autistic pride day is a time set aside to appreciate and celebrate those who live with autism.  The message shared on this day is that the people who suffer from autism are not sick, they are neurodiverse. Autism should not be viewed as a disease but as a different state of being.

If you are looking for the right specialists and way to really join your care team together, consider HealthLynked.  Our platform is designed so that medical practitioners and the diverse patient population they care for can truly collaborate on wellbeing, and it is designed to especially enhance the efficient exchange of health information.

As teams work to discover the causes and research cures, the effective exchange of relevant health information becomes essential in caring for those with ASD.  Safe, secure and convenient, HealthLynked allows patient members and their providers to immediately share and collaborate on their must up to date medical information. This exchange ensures the best possible care is provided, critical when working with autism.

Ready to get Lynked?  Go to HealthLynked.com today to sign up for free!

 

Sources:

autismspeaks.org

ninds.nih.gov

autisticadvocacy.org

thelancet.com

 

6.5 Ways to Refocus on Health this Father’s Day

At HealthLynked, we believe every day is a great day to focus on wellness and remind those around you health is true wealth.  Today, Father’s Day, is another great opportunity to heighten the awareness of preventable health disorders and disease and encourage the men in your life to be more active and health conscious.

For Father’s Day, we serve up these gentle reminders of 6 ways you can refocus on your health, courtesy of the CDC:

  1. Get Enough Sleep

Aim for seven to nine hours per night.  Your mind and muscles need the recovery.

  1. Stop Smoking

If you quit now, you’ll lower your risk for cancer, COPD, and other smoking-related illnesses.

  1. Exercise More

Enjoy at least 2 ½ hours of aerobic activity, plus muscle-strengthening exercises, each week.

  1. Eat Healthy

Your diet should include a variety of well proportioned proteins and fruits and vegetables daily.

  1. Reduce Stress

You’ll feel much more relaxed if you avoid drugs and alcohol, connect socially, and find support.

  1. Get Regular Checkups

You need to know your blood pressure and cholesterol numbers; if they’re elevated, your risk for heart disease and stroke goes up…. High blood pressure may even increase your risk for erectile dysfunction!  You also need screening for colorectal and prostate cancer.  Across every spectrum of disease, positive outcomes are more likely with early detection.

The Truth

Men simply do not visit caregivers as often as they should. According to a CDC report, women are 100% more likely to visit a physician for preventive services and routine checkups.  The same report remarks men are 33% less likely to see their doctor for any reason, even when symptomatic.

The American Heart Association outlines the following 10 common excuses men give for not seeing a doctor:

“I don’t have a doctor.”

Step one toward staying healthy is finding a doctor you trust, and you’ll never know if you trust one unless you try. Check your insurance company and our healthcare ecosystem for one in your area. Call their offices and ask questions.

“I don’t have insurance.”

Everybody should still have insurance under the Affordable Care Act. If you don’t, there are plenty of resources available from state, local and charitable organizations to pay for your care.  Seek them out….

“There’s probably nothing wrong.”

You may be right, but Some serious diseases don’t have symptoms. High blood pressure is one, and it can cause heart attack and stroke. (That’s why they call it “the silent killer.”)  High cholesterol is another often-symptomless condition. Ditto diabetes. Finding a health problem early can make an enormous difference in the quality and length of your life.

“I don’t want to hear what I might be told.”

Maybe you smoke, drink too much, or have put on weight. Even so, your doctor’s there to help you. You can deny your reality, but you can’t deny the consequences. So be smart: Listen to someone who’ll tell you truths you need to hear. Be coachable.

“I don’t have time.”

There are about 8,766 hours in a year, and you want to save … two? When those two hours could save your life if you really DO need a doctor? If you want to spend more time with your family, these two hours aren’t the ones to lose.

“I don’t want to spend the money.”

It makes more sense to spend a little and save a lot than to save a little and spend a lot. If you think spending time with a doctor is expensive, try spending time in a hospital.

“Doctors don’t DO anything.”

When you see a barber, you get a haircut. When you see the dentist, your teeth get cleaned. But when you get a checkup, the doctor just gives you tests. It may seem like you don’t get anything, but you do. You get news and knowledge that can bring better health, if you act on it.

“I’ve got probe-a-phobia.”

You don’t need a prostate cancer exam until you’re 50. Even then, remember that your chances of survival are much better if it’s caught early. So, it’s worth the exam, and it’s only one small portion of a physical. Don’t let one test stop you from getting all the benefits of an annual physical.

“I’d rather tough it out.”

If pro athletes can play hurt and sacrifice themselves for the team, you ought to be able to suck it up, right? Wrong! The Game of Life is about staying healthy for a long time – a lifetime.

“My significant other has been nagging me to get a checkup. I’m a Rebel!”

OK, so you don’t want to give in, but isn’t it POSSIBLE you could be wrong? Give in on this one. See the doctor.

The risks of avoiding preventive care are real and can be devastating. According to the Centers for Disease Control and Prevention (CDC), the 10 leading killers of American men (regardless of age or ethnicity and in order) are:

Heart disease

Cancer

Unintentional injuries

Chronic lower respiratory diseases (such as COPD)

Stroke

Diabetes

Suicide

Alzheimer’s disease

Influenza and pneumonia

Chronic liver disease

Unlike the majority of women, who tend to seek medical care when even when they do not have symptoms, men often believe if you “feel fine,” there’s no reason to go to the doctor. It is important to note many can feel normal with high blood pressure, high cholesterol, or abnormal blood sugar levels. Even when men don’t feel so great, they tend to wait for symptoms to go away on their own — like when they drive around aimlessly because asking for directions admits weakness!

Be aware, you do not need a “one-size-fits-all” physical.  Collaborate with your healthcare provider, and depending on your profile and lifestyle, decide which screenings, diagnostic tests, and immunizations are right for you. The timing and frequency should be based on your risk factors for developing a condition or disease, including family or personal history, age, ethnicity, and environmental exposure.

In honor of Father’s Day, dads and those who care for them, go to the HealthLynked.com to find a physician you really connect with….Spend a few moments building a healthier life by collaborating with physicians who care, and begin building a health record for yourself that will help you set records for living a full life.

From all of us here at HealthLynked, consider our Free profiles a great gift for becoming the best version of you!  We all wish you the very best today and every day!

 

 

Ground Breaking App is the Future of HealthCare – Meet HealthLynked!

People who saw the Demo in December of 1976 might have guessed they were witnessing the birth of something big.  However, it was not at all clear then the little machine and the team showing it off were more significant than any number of other exhibitors at the West Coast Computer Faire –  a smaller tech conference akin to the Worldwide Developer Conference going on today through Friday in San Jose.

Soon thereafter, it became increasingly evident the new gadget was really going to matter. The first of its kind product started selling on this day, May 5th,  in 1977.  By the end of the year, it was gaining fame as one of the best among a new tech genre – microcomputers.  Before this unique platform came to market, predecessors were aimed at techno-nerd gearheads who knew how to sling solder, build their own and at least had Basic code in their repertoire.  This new one was practically plug-and-play.

The Apple ][ has sometimes been named the first personal computer.  It certainly was one of the best selling and had the longest run of home computers, built well into the 1990s.  What really made it stand out was its visionary design.  It was created as the clearest idea of what a PC should be and where it could really take us.  Eventually, it even returned us to space as the computers used to monitor the clean rooms around our shuttle builds.

The vision it embodied married the widely different yet wildly complementary gifts of two Steves – Jobs and Wozniak. To help it break out of the Homebrew Computer world, the Apple II, like future Apple products, had the right features and best vision in place. While it didn’t have what would later be known as a graphical user interface, it did have a richer, more interactive feel than other PCs.  It was one of the first models to host color graphics and sound right out of the box, and even came with two paddles as standard equipment. Such features made it a natural for games and educational software; they also made it a uniquely inviting device.

The platform Woz built and Jobs shaped and marketed was, indeed, a platform — the best and most successful container of its generation for interesting and useful hardware and software add-ons, much like the iPhone and iPad today. “Simplicity is the Ultimate Sophistication”, read the headline on the first Apple II brochure. A nod to the wisdom of Leonardo Da Vinci often quoted by Einstein, it captured Apple’s philosophy, then as now.

The Apple II readied the world for the Mac, the iPod, the iPhone, the iPad and, likely, every other major technology gadget or platform of the past 41 years. Countless others have followed its lead.

On this day, the 41st anniversary of this amazing platform, we at HealthLynked are launching our own.  We believe it will be the kind of breakthrough in its own genre the ][ was.  That’s a lofty ideal and bold belief, yet we want the whole world to have access to their own medical information in the ways Woz and Jobs wanted the whole world to compute.

And we built the HealthLynked platform to make that possible.  It has all the right stuff to let patient members really take control of their healthcare,… and the right vision for providers to really have access to all the real-time health information that makes the best possible care a reality.

We are Improving HealthCare!  Go to the Apple store or HealthLynked.com today to download the first of its kind, universal, portable health record and connection and collaboration tool that is clearly paving the way to a much better medical future.

Sources:

TIME.com

Computerhistory.org

 

#apple #iPhone #iPad #iOS12 #WWDC18 #PatientCare

#HealthCare #HealthLynked

Some Eating Disorders Increase the Odds of Death 18-Fold

 

Trigger WarningThis article covers one or more eating disorders in graphic detail.

We began to notice eating out was often a struggle, even around the sixth grade.  Just a picky eater, right?  I mean, we all have our preferences. We made room for her to assert her will as she began to grow into adulthood.

Then, favorite foods started to disappear from her diet, exercise amount and intensity really picked up, and anxiety started to reach pressure cooker levels around foods she considered “disgusting”.  Finally, on a trip with friends to the beach, we witnessed our daughter abandon the group to workout.  The ultimate alarm: in a fit of desperate anguish, she ran out of a restaurant sobbing…panicked about the menu choices.

The rest of our drive home, my wife researched eating disorders on her phone and decided Piper had Orthorexia –  a term with varying levels of acceptance in the eating disorder treatment community to describe a collection of behaviors that focus on “perfect” eating.  We agreed to intervene and seek help.

In the weeks that followed our initial discussions with her – she, in complete denial; we, in utter despair –  the physical signs of her disordered eating were becoming readily apparent.  She was way too thin and had stopped menstruating – especially essential at her age for continued development and strengthening of bones.  She was wasting away before our eyes, and we started to consider in-treatment programs while we tiptoed around tough topics to prevent another frightening blowup.

While we waited for an opening with professionals skilled in eating disorder recovery and lobbied mental health experts for help, we continued to clumsily insert ourselves into the decisions she was making around food and exercise.  The gym trips on top of swim team practice had clearly become a way for her to purge without actually throwing up, so we sat her down one night to tell her there would be no more working out…She leapt from our kitchen table, ran to a drawer, pulled a knife, and started to try to slice her wrists in rage.  Luckily, we were able to restrain her, her superhero sister calmed her down, and we got her to a hospital.

The months that followed were not easy, and Some of the way too deep talking was often tougher than I had imagined it could be.  The struggles were complex and very real.  I still spend many nights not wanting to leave her alone, but our youngest is well on the road to recovery.  We were able to find a great team, which included us, to help her restore mostly normal eating and thought patterns, and we are confident she will be able to head off to school next year without concern for her mental health.

What was happening?

An eating disorder is any of a range of psychological disorders characterized by abnormal or disturbed eating habits. This pattern of eating leads to disruption in one’s behaviors, thinking, and mood and can eventually leave one unable to function in any number of areas: interpersonal relationships, social situations, school, and work. Ultimately, it can lead to severe disruptions in overall health, and even death.

In fact, eating disorders have the highest mortality rate of all mental health issues.  Eating disorders may seem benign, but every 62 minutes, someone dies as a direct result of an eating disorder.

Actual Mortality Rates

Studies report varying death rates from eating disorders, but there are common findings. Anorexia is the most lethal psychiatric disorder, carrying a sixfold increased risk of death — four times the death risk from major depression. A meta-analysis by Jon Arcelus, MD, PhD, of the University of Leicester, England, and colleagues found these standardized mortality rates: 5.86 for anorexia nervosa, 1.93 for bulimia nervosa, and 1.92 for eating disorder not otherwise specified (EDNOS). Research has demonstrated higher death rates for bulimia nervosa and EDNOS than these figures. According to one study, the mortality rate for anorexia nervosa patients aged 25 to 44 followed after hospital discharge was 14 times that of age-matched non-eating disordered peers. (That’s 14 times!)

According to Arcelus, et al, age plays a major role.   Those diagnosed in their 20’s face the worst odds at 18 times the death risk of healthy people their age.  Overall,  Anorexia increases death risk:

  • Threefold when diagnosed before age 15.
  • Tenfold when diagnosed at ages 15 to 19.
  • 18-fold when diagnosed at ages 20 to 29.
  • Sixfold when diagnosed at ages 30 and older.

Warning Signs of an Eating Disorder

One who suffers from an eating disorder will continue damaging and destructive behaviors despite such compelling evidence these behaviors are not in that person’s best interest. Their driven actions may be caused by any number of factors and serve any number of purposes.  Early intervention markedly improves treatment outcome, which is one reason to ensure individuals with eating disorders receive a prompt diagnosis and access to treatment, preferably evidenced-based wherever possible.  If you or someone you love is showing any of the signs below, especially in combination, get help immediately:

Alterations in Weight

  • Unusually marked weight loss. If the person weighs less than 85 percent of their ideal body weight and exhibits other characteristic signs of an eating disorder, this person can be diagnosed with Anorexia Nervosa.
  • Many can still be close to, at, or even above their ideal body weight and still have an eating disorder. This is somewhat often seen in binging and purging behaviors typical of patients diagnosed with Bulimia Nervosa and includes restrictive, rigid rule based eating.

Preoccupation with Body Image

  • May spend an inordinate amount of time looking in the mirror.
  • Often makes negative comments about her physical appearance and insists they are overweight.
  • May become preoccupied with certain celebrities and models on the Internet and in magazines, comparing themselves unfavorably to them.
  • Wearing baggy clothing to hide their body shape. I am a 220 pound barrel chested bear of a man, and my sweatshirts became de riguer for my little girl.

Disruptions in Eating Patterns

  • Stops eating with the family
  • Develops strong dislikes to previously enjoyed foods
  • Preoccupied with counting calories and fat grams
  • Eats noticeably smaller portions or refuses to eat at all
  • Starts binging on certain foods
  • Drinks excessive amounts of water and caffeine to suppress appetite
  • Goes to the bathroom after meals to vomit what they just ate
  • May develop eating rituals such as:
    • Chewing for long periods of time before swallowing
    • Cutting food into small portions
    • Not allowing different foods to touch
    • Moving food around on the plate
    • Taking a long time to eat
    • Hiding food into napkins to throw away later

Preoccupation with Nutritional Content of Foods

  • Classifies foods as good or bad, healthy or unhealthy, safe or unsafe
  • Searches out organic, low-fat diet foods
  • Frequently visits Internet websites focused on nutrition
  • May suddenly decide that they are going to become vegetarian, vegan, etc.
  • All of the above became concerns around our house, and this obsession with “right” eating became her “religion”

Changes in Exercise Patterns

  • Becomes preoccupied with physical fitness
  • Spends hours exercising in a ritualistic, rigid manner
  • Talks about the number of calories that they burned and the time they spent exercising
  • Becomes perturbed if their exercise routine is disrupted and eats even less to compensate

Use of Laxatives, Diuretics, and Diet Pills

Mood Fluctuations

  • May show signs of irritability, depression, and anxiety
  • May stop socializing and lose interest in previously enjoyed activities

Physical Eating Disorder Symptoms

  • Fainting spells from malnutrition and dehydration
  • Chapped lips and grey skin
  • Hair loss
  • Irregular or absent menstrual cycles
  • Disrupted sleep patterns
  • Musculoskeletal injuries and pain from excessive exercise
  • Dental erosions from self-induced vomiting.
  • Chronic constipation, gastro-esophageal reflux, and other gastro-intestinal problems
  • Markedly low blood pressure and pulse
  • Prone to upper respiratory infections
  • Low energy
  • Overall poor health

Nine Truths about Eating Disorders

Nine Truths” is based on Dr. Cynthia Bulik’s 2014 “9 Eating Disorders Myths Busted” talk at the National Institute of Mental Health Alliance for Research Progress meeting.

  • Truth #1:Many people with eating disorders look healthy, yet may be extremely ill.
  • Truth #2:Families are not to blame, and can be the patients’ and providers’ best allies in treatment.
  • Truth #3:An eating disorder diagnosis is a health crisis that disrupts personal and family functioning.
  • Truth #4:Eating disorders are not choices, but serious biologically influenced illnesses.
  • Truth #5:Eating disorders affect people of all genders, ages, races, ethnicities, body shapes and weights, sexual orientations, and socioeconomic statuses.
  • Truth #6:Eating disorders carry an increased risk for both suicide and medical complications.
  • Truth #7:Genes and environment play important roles in the development of eating disorders.
  • Truth #8:Genes alone do not predict who will develop eating disorders.
  • Truth #9:Full recovery from an eating disorder is possible. Early detection and intervention are important.

What Are the First Steps to Recovery?

If you, or someone you know and love, shows any of these signs or exhibits patterns of the behaviors described above, it is important to get help as soon as possible. An eating disorder can quickly take on a life of its own and lead to a downward spiral of:

  • Functional disruptions
  • Broken relationships
  • Loss of educational and occupational opportunities
  • Deterioration in health
  • Possible premature death

The treatment process can be started by contacting the person’s primary care physician for a physical evaluation, including laboratory studies and an EKG, and ask for or initiate finding the appropriate level of treatment for the eating disorder. This may be a therapist that is comfortable working with eating disorders, an outpatient eating-disorder program, or even an in-patient facility that specializes in eating disorders.

As I reread the lists and statistics above, I now see so clearly all we were missing, or more accurately, dismissing as normal teenage “junk”.  We would celebrate a milkshake eaten on a weekend and convince ourselves we were seeing things.  That is how the eating disordered individual wants it, or, more accurately, the disease wants it.

An eating disorder, or ED for short, represents the closest thing I have seen to the metaphorical little devil and little angel on the shoulder scenario.  The devil – the disease – is lying and convinces the individual to lie….Then, that little devil, ED, puts on airs of being the little angel and starts to consume the mind…and the minds around the individual in the fight.  So insidious.  So scary.

Since today is World Eating Disorders Day, we challenge you to avoid being lulled into complacency or denial!  Because eating disorders can often be successfully treated, especially when they are caught early, little can be gained—and everything stands to be lost—if one takes a hurry-up and do-nothing attitude towards this pervasive problem.  Gather together a team.  Stay strong in the journey.

Get help as soon as possible.

If are looking for a health professional who can help begin your journey to recovery, you might find them using HealthLynked.  It is the first of its kind medical network built as a social ecosystem with a Higher Purpose – Improving HealthCare.  Go to HealthLynked.com to learn more and find our additional resources on mental health information.

DISCLAIMER:  You must know, I am just a half-a-brain helicopter pilot and mechanical engineer turned accidental sales person who became an occasionally adept commercial leader.  My wife, who lead our charge against ED, has been an incredible CEO of our home for almost 30 years.  I am not a medical professional, so what I am sharing here should be in no way misconstrued as health advice.  This list is not exhaustive.  It is only some of what we learned in facing the fearsome specter of mental health gone askew in our own home.

Sources:

WebMD

Stanford Daily

AEDWeb.org

VeryWellMind.com

 

HashTags:

#WorldEatingDisordersDay

#WeDoAct2BreakStigma

#WeDoAct

#EatingDisorder

#MentalHealth

#Anorexia

#Orthorexia

#HeatlhCare

#HeathLynked